thefaultinourspoons:

So Red Band Society is getting a lot of negative comments from the spoonie and chronic illness community. I want to make a post about what life in the hospital is really like, so if anyone has any pictures of them in hospital, I would really appreciate it, preferably where you aren’t looking happy, but if you’re smiling, it doesn’t matter. Please either submit it to me, or tag it with ‘the real red band society’. 

I’m going to watch the first episode and make a post with any pictures you guys have for visual aids. 

I’m hoping people will share the end post so people can see what living in a hospital is really like, because trust me, life does not begin when you get admitted to hospital.

image

This is a picture of me and Luke, Luke was in hospital with me for about 5 weeks, we spent the majority of the time together, and the below picture is me with all the medicine pots I collected whilst I was in hospital, yes, they’re all mine, and I didn’t even start collecting from when I was first admitted.

image

Anything like this or from your time in hospital will be greatly appreciated

fashionandanostomy:

thefaultinourspoons:

palewansickly:

thecvsgirl:

basically how i feel
I wish I could go to pediatric hospitals forever

I stayed in peds until I was 26!

share your secrets

I switched to an adult GI (who provided most of my medical care) at about 15 or 16. And to be honest, it was a good choice for me. Because for most of the pediatric specialists I needed, I had to drive to [major City] about an hour away - which meant a day off school and missed athletic practices. Once I switched to adult doctors, there were way more specialists available in my [minor city] and I travelled less and had an easier time getting drs. So sure, the switch can be scary, but there are plusses too.

It’s not that I’m scared, it’s that when you get to adult services that the doctors just don’t care as much as the doctors/nurses in peds

fashionandanostomy:

thefaultinourspoons:

palewansickly:

thecvsgirl:

basically how i feel

I wish I could go to pediatric hospitals forever

I stayed in peds until I was 26!

share your secrets

I switched to an adult GI (who provided most of my medical care) at about 15 or 16. And to be honest, it was a good choice for me. Because for most of the pediatric specialists I needed, I had to drive to [major City] about an hour away - which meant a day off school and missed athletic practices. Once I switched to adult doctors, there were way more specialists available in my [minor city] and I travelled less and had an easier time getting drs. So sure, the switch can be scary, but there are plusses too.

It’s not that I’m scared, it’s that when you get to adult services that the doctors just don’t care as much as the doctors/nurses in peds

palewansickly:

thecvsgirl:

basically how i feel
I wish I could go to pediatric hospitals forever

I stayed in peds until I was 26!

share your secrets

palewansickly:

thecvsgirl:

basically how i feel

I wish I could go to pediatric hospitals forever

I stayed in peds until I was 26!

share your secrets

My mum’s called Nicola and at first I thought you were talking about her and got confused, haha. Brain fog woo

haha, omg, this cracked me up!!

thecvsgirl:

basically how i feel
I wish I could go to pediatric hospitals forever

thecvsgirl:

basically how i feel

I wish I could go to pediatric hospitals forever

missevie06:

Day 5

The day started badly, with painsomnia keeping me up till after 5am, though I did manage to sleep till midday after.

Managed to do an hour or so of housework in the afternoon and booked myself in for my first haircut since Feb next week!

Best part of the day was definitely managing to get VIP tickets for myself and the bestie to Readers and Writers Down Under 2015. 2 days of being in book nerd heaven next March on the Gold Coast. So excited about it as we had so much fun at this year’s one and that was only half of what this one will be I think.

flaresof-fibro:

living somewhere between “should I” and “why did I”

my shift was cancelled at work today, so I made plans, but then I got asked to come work again, and I can’t cancel the plans, here go all my spoons

I’ve got to go to the doctors
Go into town to get some more trousers for school
Go have my second job interview (which I thought I wasn’t getting so yay!)
Have to tell Nicola that I’ll probably have to leave early in order to go to work
Spend the night worrying about whether or not I got the job
Work
Go home, collapse and try to get some sleep

100 happy days of a spoonie: day 3

lenamazz:

My sister came home from college today for the weekend because she has to work at the hospital the next 2 days. It’s nice having some extra company! Tomorrow is Friday and thank god that I got through another week of school. Also tomorrow my whole family is going to be away from home until probably 1 AM (parents are going to a wedding and sister’s working a late shift), and I don’t care if it makes me a wimp but I’m scared to be home alone for that late all night…lol so I’m going to attempt to stay the night at a friend’s house. Key word is attempt…I’m nervous because I’ll be so tired and probably in a lot of pain so it might not even be fun. I’ll have to update about that later. But anyway, today was a pretty easy day and I’m glad my sister’s here to visit for a little bit!

100 Happy Days of a Spoonie (8/100)

deathcab-fornicole:

Day Eight

Today I spent the day in bed watching TV and knitting. Susie stayed with me the whole time, and Su and I texted nonstop. I had a small trip to the yarn shop and tea shop, and I had a berry lime rickey popsicle. I almost only ate food that was crap for me and almost didn’t freak out about it.

It was a very quiet day but a very, very god one. I needed to not think about my problems and I didn’t and I had an excellent time.

Cheers to TV in bed all day days :) :) :)

greeneyes-n-butterflies:

100 Happy Days of a Spoonie: Day 24 - Part 1

I haven’t done one of these in awhile. It’s been really hard to find things to be positive about lately. I feel like my depression has actually become a worse issue than my thyroid. I did find a physiatrist (nurse) to go to that covers family conflict, domestic abuse, eating disorders and stress from chronic illness which suits me perfectly. And she’s on my insurance and a she (meaning better suited to handles EDs, at least in my experience). But I have to wait 3eks to see her. I just have to hold on and stay alive until then.

To say it’s been a rough week would be a massive understand. So today my mom took me the the Big E. We’d been planning on going but other ‘stuff’ got in the way. It was nice to get away. We did have to stop on our way there because my mom asked me what if had for breakfast and I didn’t think fast enough and she figured out I hadn’t eaten anything all day. She made me go into the nearest Whole Foods and said if I didn’t eat anything we’d go home. I have no interest of food lately and most of the time the smell even makes nauseous. Anyways we had a good time. I over used my spoons walking (I couldn’t bring myself to use my came again… I know, I know) and almost blacked out twice (I didn’t let my mom know) and I may not be able to move tomorrow but it was worth it. I’ve had no idea what to do with myself which has made my depression even worse so having somewhere to go was helpful.

There are more photos but Tumblr only allows 10 at a time.

greeneyes-n-butterflies:

100 Happy Days of a Spoonie: Day 24 - Part 2

My favorite part of the Big E is usually the animals but I will say that I saw more situations of misconduct regarding animals than I ever have before which bothered me. Normally they’re treated better as they’re mostly show animals so I was surprised and had to leave the building. My mom and I always love the craft shoppes. I didn’t spend any money aside from a $2 cup of Vermont coffee that was pretty good. Didn’t really see the point in buying things I don’t really need. My mom however bought a bunch of stuff including a $300 saw. Seems like a lot but hiring someone to cut down the branches she can now do herself would be more costly.

Next weekend is the Durham Fair and in October we go to the Garlic Festival. Which sounds silly and it kind of is but it’s turned into a tradition for her and I. She takes the day off work any everything. Should be fun.

That’s all for now. I’ll try to post more often.

Day 22

justlittleali:

My tutoring student never showed up today so I got payed to study AND I napped for three hours.

100 Happy Days of Being a Spoonie

calculatorpoetry:

DAY 4 - 9/18/14

My back pain wasn’t as bad today.  However, I went to bed at around 2 last night and my fingers are still hurting.  They’ve been locking and hurting for a while, does anyone have any advice?

My shoulders were also cracking a lot.  Tomorrow’s Friday, which means I can sleep early and take some time to get used to my new meds.  Actually, one is an anti-depressant that was prescribed to me by my pain psychologist.  Apparently in small doses it can be used to treat pain?  I don’t know.

Hopefully I’ll be able to rest up tomorrow!

100 happy days of a spoonie day 22:

peppermintskies:

My friend was really kind and took me shopping for some bits and bobs I needed and pet stuff. Since I’ve upped my citalopram I’ve been a bit away with the fairies and didn’t feel safe to drive. Don’t know what I’d do without her.

I’ve had a killer headache for hours now, but watching Black Books and having some amaretto and coke in the dark with the cat is making me feel better.