Day 28

abnorm-ali-ty:

So I moved out of my apartment this morning and I am in so much pain and very fatigued. But I’m with my new roommate — wibblywobbly-superwho — until the end of next school year now, and that’s awesome! c:

Also, since I’m back at my parents’ house, I have kitties and puppies to love on and a hot tub to rest my achy muscles in!

I’ve also been doing a ton of medical research today to take to my APRN at my next appointment in about week, and I’m going to ask her if she could refer me to a rheumatologist since she might not have the appropriate skills / tools to do a full diagnostic thingy (sorry, brain fog) on me.

ramblingsofachronicallyillteen:

You really can’t win when it comes to having a chronic illness.
If you complain, you’re over dramatic/attention seeking
If you don’t, people assume your pain doesn’t exist/isn’t as severe as it actually is.

littlelittlexo:

Day 1 post op. Feeling okay :) I’ll get through this, I held down liquids and I’ve peed by myself twice without pushing it out. I can’t wait for the pain to ease more in a few days.

I hope everything goes okay

Day 29

abnorm-ali-ty:

Finished our spoonie-themed university door decorations today, with wibblywobbly-superwho :D They came out amazing!

Also made a really cute spoonie design today!

brownwerkk:

Waking up and feeling like you’ve been hit by a truck? Check

It’s really hard to get out the bed because your whole body feels heavy? Check

Feeling overwhelmed? Check


Neck and shoulders in a lot of pain? Check

Kinda sorta wanting to die? Check


100 Happy Days: day fifty seven

I found a packet of black currant fruit pastels, my day is made.

I also got discharged from my paediatrician.

100 Happy Days: day fifty seven

I found a packet of black currant fruit pastels, my day is made.

I also got discharged from my paediatrician.

Goodbye peadiatrics, hello adult services.

No more stickers for me.

Goodbye peadiatrics, hello adult services.

No more stickers for me.

I can't think of anything really off the top of my head, but Ironside is about a Detectie in a wheelchair, although it is very dated. I already said this in a comment on the post but I'll say it again, I think it's better to watch medical dramas like House or Doc Martin or even Scrubs, rather than TV shows about chronicly ill people, because you don't get all the romanticised crap, and you can still really relate to a lot of the patients.

spooniestrong:

[submission]

They remade Ironside last year, but it didn’t take off, so I’m not too sure whether they made the whole season, they stopped showing it after three episodes in the UK because it wasn’t as popular.

Personally I didn’t find it believable, as all the crime scenes and everywhere he went was wheelchair accessible.

I feel as though the whole years caught up with me, that every single little thing I’ve done has only just taken the energy from me. I can’t remember the last time I felt this fatigued.

Question for fellow spoonies

nothingbutaduckling:

Does anyone have any tips on how to work out enough to lose weight without hurting too much? I’ve been working out at my YMCA but I end up not going due to pain and then all my hard work does nothing because I’m not consistent. I’m really trying to get fit and healthy but it’s harder than it should be due to the amount of pain I’m in. Help?

anyone?

100 Happy Days: day fifty seven

I finished my pass plus today!

❤️, ➕??
Anonymous

I’ve already answered both of these already, sorry, but thanks for the ask!

❤️🎵

Does your diagnosis affect your romantic life?

Well technically no, because I didn’t have a romantic life before I fell ill, and I still don’t have one now