100happydays day 4
today’s happy moments
- these peach handpies were so fucking good. Seriously. Plus the fact I ate 3 or 4 peaches today. Gonna enjoy the end of peach season as much as I possibly can. (Yeah I just posted this photo a bit ago, but it deserves to be seen again :p)
- I took a nice long walk through the city with my dad and it made me feel so much better physically and emotionally. I am still trying to fight this sinus infection and I feel like getting my lymph system moving can only do good
- rediscovered twists are cute hairstyle to do more often
- Decided to skip out on the fair my family went to and it was definitely the right decision. Used the energy I saved to do a bit of spot cleaning in my room. My floor may not be clean at all, but the area around my bed is now vacuumed, and the surfaces dusted so hopefully there will be a lot less dust and allergies because of it
- about to go take a nice epson salt bath!
So shaken but very relieved and happy right now. An elderly lady walked straight into my house today, my OH shut the door on her as we didn’t know who it was or what they could do. I looked outside and it was just an elderly lady very confused and talking to herself. She had dementia, so I rang the police from inside my house so I didn’t scare her, then went and chatted with her while I waited.
To end the story I just phoned the police back and she has been identified and is home safe :) I’ve been so worried about her since I left her with them but I’m glad it was a happy ending.
The response from local people trying to help was amazing and so was the police’s. I didn’t think I could be one of those people that run out to someone to help, not knowing who they are or what they could have done. I feel like I have very little confidence at the moment, but I feel quite proud of myself for going and helping someone.
Happy Labor Day weekend everyone (in the US of course ;D) I hope its been a safe and enjoyable one!
I’m gunna make this short and sweet tonight cause I’ve spent WAY too much time looking at screens today and my eyes are not feelin’ any more lol
I’m grateful for reconnecting with my friend Amber who I spent all day texting with today. I haven’t talked that much to anyone other than family in quiet awhile. I guess she met one of her boyfriends friends after she left my house yesterday and thinks that he and I have a ton in common and wants us to meet. In two weeks she’s talked about doing a fire at my house (so I don’t have to leave the house). Even offering to help me with it as I can’t pile wood like I used to lol It has me super nervous but I guess he’s an understanding guy who’s actually going into nursing so maybe my being sick won’t bother him too much. But I’m thankful to be thought of as far as set ups go.
Thats all for now lol Off to spend the rest of my night in the dark :P
Peace, love and spoons <3
This is my new favorite thing. I seriously recommend anyone with anxiety and/or neck/shoulder pain and tightness look into getting one. It’s a little wrap that you heat up in the microwave and then put in, it velcros so that it doesn’t slide off! It also has relaxing and anxiety-calming herbs in it that are released when it gets warm. It’s a beauty! I got it for my dad a few years ago and never thought I would be using it, but it’s just so nice. Eases pain AND anxiety? Win. Plus makes me sleepy? Double win.
SpoonieStrong Selfie Saturday with sleepy little Anna. ♥
I haven’t written a happy day lately, so here goes: Jay came back from hospital, he’s getting better, my house is still reasonably clean, my mum’s coming to help get it more clean tomorrow, then we have our gym induction :) and I’m writing a wish list for payday
My mantra for the past week: You’re unwell and you’re allowed to be unwell. Sometimes you’re not capable of doing anything but being unwell, and that’s okay. Sometimes all the world needs from you is just to get through each day. You don’t have anything to prove, you don’t have a deadline to meet, you’re allowed to set your own pace. Just look after you.
Your best is always, always enough — even if what “your best” is changes daily due to energy/spoon loss, etc!
Your health is important, please take care of yourselves. ❤
Wow Anon what a wonderful question, thank you so much for asking.
Firstly, I have to say clearly you are a wonderful person for even considering this, and I am sure your friend or family member will understand your intentions even if they come out clumsily or not what you mean to say.
I know myself people say things to me that aren’t exactly what i want to hear, but I know when they mean it from a good place so I smile and thank them because they are trying their very best to be helpful and kind.
(For instance, I often hear “You’re looking really well!” which is meant as a nice thing, but it’s pretty meaningless when I feel like death. I hide my suffering, I’m not underweight and drawn, I wear make-up to disguise dark circles and pale cheeks. So it’s my own “fault”, but I do it because looking better does make me feel a little better)
Anyway to get back to your point, I’d say good things to say are “I’m sorry you’re feeling bad/worse/not so good just now, I hope you feel better soon”. “feel better” is a good phrase, because you’re not saying you hope they will be cured or fixed, but just that they feel better than they do now. Similar phrases like “I hope things improve for you soon”, or “I hope you’re able to get back to doing some of the things you enjoy soon”.
When you are chronically ill, being able to do the things you get a small pleasure from is really the one thing you cling on to on your dark days. Even saying “I hope you get a break from it”, or “I hope you’re able to get some good rest” are also understanding that when illness rules your life, all you want is 5 minutes from feeling it, or a good night’s sleep, or simply able to lie comfortably without pain or discomfort.
It shows how understanding you are that you get that we have a “normal for us” situation. Sometimes we have to accept that our “normal” or base level has changed, and that’s a very hard thing to accept. The past year or so i have had to realise that the amount of sleep I need has changed, and it’s tough. I feel guilty knowing I have slept the entire time my husband is out at work - a full 8 hours on top of some at night when he is asleep. But my husband makes it better because he says “You obviously need the sleep, listen to your body.”
Of course, the best thing anyone can ever say to someone who is ill that is ALWAYS welcomed is “Is there anything I can do for you?” and mean it.
Got a medical alert bracelet from Road ID! I love it. There are a bunch of choices for the color of the band, and 6 lines of text (I think 25 characters per line). I went with a red band because I thought it would be most noticeable, but I might go for a funner color in the future if I feel like my risk of needing it is smaller. I bought the medical alert charm for a couple dollars extra.This bracelet is comfy, waterproof, and definitely not coming off (there is a complex metal buckle designed to withstand impact). The bracelet is one size fits all and you cut to the exact right size. The end result is it fits me perfectly with no loose end or anything.
In case anyone needed inspiration for what to write on theirs I did a bit of research, and apparently some of the most helpful info are your name and town (so your medical records can be found) and phone numbers for emergency contacts. Emergency responders will also call you by your name which apparently is particularly effective at getting your brain to wake up and pay attention. I also put Ehlers Danlos Syndrome and Lax Spine/Joints. That way I kind of cover all my bases - basic info for people who won’t have heard of EDS and then the full name so they can look it up later. Last time I was at the ER (I was conscious) they did look up emergency info for EDS and they changed what tests they ordered because of it. If I had more space loose/unstable joints would have been even better, but lax should do it.
Finally added my blood type and birth year because those were recommended and I had the space.
I chose not to mention POTS/autonomic dysfunction because I do not normally pass out because of it, so I wouldn’t want them to take me being unconscious lightly because of it! But if you DO pass out often from it or have crazier heart rates than I do, adding that along with syncope or tachycardia can prevent people from freaking out more than they should over it.
My text reads
Nina xxx … (my full name) /1994
City, State, USA
Mom (xxx) xxx-xxxx
Dad (xxx) xxx-xxxx
Ehlers Danlos Syndrome
Lax Joints/Spine O Pos
Generally just feel a lot safer leaving the house alone now that I have this. Because I also get confused and disoriented sometimes I like that I can point to my name and emergency contacts if I need to. I’ve worried about not remembering the passcode on my phone or how to use my contacts if I got like that and needed help, so this had the potential for being helpful in more situations than just if I’m unconscious
100 Happy Days of a Spoonie: Day 4
I’m thankful for giant spoons! I found this art piece at Pier One last week and went back today to order it. I used to have this huge frame on my wall in my room that was a collage of me and my friends. But I kept waking up to it and knowing pretty much none of them are in my life anymore. That’s not a happy thing. Now I have a big empty wall. SO I’m going to take this EPIC spoon and glue paper flowers and lil quotes and stickers on it and make it the first thing I see in the morning 😄 I can’t wait until it comes in!
I felt not awful today so I went to see a movie I’ve been wanting to see since it came out but everyday I’ve been too tired to go. I saw “Into the Storm” and it was pretty good. Sarah Wayne Callies is fracking hawt lol Then I went shopping and got a bunch of baggy sweaters, and different color Jeggings. This fall/winter I’m gunna be totally comfortable. Oh! And I couldn’t stop laughing when I saw this t-shirt in the mall. Clearly someone knows the IBD/IBS/CIC pain haha 💩(<- I’ve secretly always wanted to use this emoji)
My old friend Amber came by to visit me tonight. We have a long and spotty history that’s always had us coming and going from one another’s lives. But we always seem to find our way back to each other. I’ll say this though. Out of all of that people that I let go of recently, Amber is the only one who not only believed that I was sick, but would always listen when I talked about symptoms or medications or whatever. We hadn’t talked much lately but she texted me this morning and asked if she could come over tonight because she had something for me. She showed up with this stunning bouquet of sunflowers! And I’d actually been disappointed that no one had gotten me an actual sunflower for my birthday! 🌻😄 Aren’t they beautiful? We went out on my patio and talked for about 2hrs. I hadn’t talked to anyone really outside of my family in about a month so I’m sure I sort of dominated the conversation. She listened happily though. I told her about all of you guys and she agreed that I was so lucky to have joined you all when I did. You’ve helped me so very very much.
On a sillier note, I’m thankful to have a goofy dog who has no problem taking the blame for my farts lmao 😂😋
Wishing everyone peace✌️, love❤️, and spoons (whyyyy is there no spoon emoji?!)! Have a great weekend, and for those in the US, a safe Labor Day! 🇺🇸
thank you, this is so sweet, I hope you’re having a good day!
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Birthday: Oct 14th
Time Zone: BST
What time and date is it there: 13.03 30.08.2014
Average hours of sleep I get each night: Anywhere between 5 and 8, if I’m lucky
Last thing I googled: a book price comparison website
I need help
Most used phrase(s): ”Where is…” “I can’t find…” “For Gods sake” “Shit”
First word that comes to mind: ow
Last thing I said to a family member: ”Will you do my hair for me?”
One place that makes me happy and why: when i am coaching. its something that is close to my heart and i love helping my athletes achieve their goals!
Favourite beverages: Ribena, Cloudy Apple Juice, and Krushems (kind of ice cream, kind of a drink)
Last movie I watched in the cinema: If I Stay
Don’t go to see it, you’ll cry the whole time and it’s nothing like the book, they missed some of the main parts
Three things I can’t live without: books, my kittens and my mum
Something I plan on learning: Sign Language
A piece of advice for all my followers: No matter what happens, no matter how bad the situation is you have to hold on to the hope that things will get better, and even if you aren’t at a place where you can think that, there will always be someone their for you, whether it’s a family member, a friend, or someone online, there will always be someone who cares about you.
You all have to listen to this song: New At This by Megan And Liz, it’s been on repeat since I downloaded it.
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