I got so many asks about my chair and style that I thought I’d just make a video about it! I hope you all like it!
I’ve been quite productive today re schoolwork (hooray) and I actually slept again last night! The ma and I went for a wee walk in the common and by the lake, where there were ten - ten - mandarin ducks, and a heron (and other ducks and swans etc.), and then we went to a café and I had a lovely spiced apple drink and a cupcake. And a baby human kept running up to me. I was flattered if a little disconcerted.
Today seemed like it went by really fast. When I got up this morning, I did a bunch of RANDO mando things. I played piano and sang and played wii with my sister (which made my arm really sore, it shook whenever I used that hand basically).
Yesterday, my parents got a TV and my dad was setting it up today. He really doesn’t like the thing it came in >.<
Sarah had volleyball today, and i had plans with jasmine. I went over to my grandparents for a half an hour until she was all prepared for me :)
So I went to her apartment and that was fun. I actually think it was the most fun I’ve had ever you guys. Well not ever. Like definitely not better than San Francisco or sleepovers or anything, but it was very good for like a 6 hour hangout (which isn’t that much for us). AND I KNOW YOURE READING THIS JASMINE SO I THINK YOURE AMAZING YEAHHHH. LIKE SO GREAT.
Towards, like, 8:00 my legs/ankles started hurting. It’s like someone is gripping my bones really hard, or like they’re splitting my bones open? Anyway, it really hurts. I think I have something. Jasmine mentioned FIBRO but idk. I just know it really hurts. It’s really cold too. IDK IDK. BUT IM COOL. Im goijg to bed soon anyway.
100 happy days of a spoonie: DAY 14
Woke up this morning feeling pretty terrible, but a good day was ahead. I did all the essential normal people stuff (aka shower/eating/going outside) + my beautiful girlfriend stopped by.
It’s always great seeing her, and it’s so nice that she is willing to do low spoon activities. We basically played video games, talked, and watched Netflix most of the time. I introduced her to Attack on Titan. Watching it for a second time actually made me laugh..? I think its all of Erens screaming. TITANSSSSSSSSSSSSSSSS!!!!!!!!!!
I’m not sure how my body feels about the hot weather, but I thought it was pretty outside today. At night it gets pretty cold so I helped my mom make homemade apple cider so good. (made me sick. worth it)
After hours of intense research my family and I have concluded its possible I have Myalgic Encephalomyelitis. As always, looking for any doctors that know anything about this. The prognosis doesn’t sound too great. Neither does the sigma surrounding the whole thing.
If you don’t know what M.E is : http://www.hfme.org/meoverview.htm
On the other hand, having a sense of what could be wrong gives me some hope. We all need that right?
Today I slept in so didn’t go for my walk at my normal time. I didn’t want to walk around campus because everyone is always in such a hurry and I walk slow. So, since I had to go grocery shopping I stopped by the arboretum and walked around there. It was really pretty and there’s always little cutie bugs.
The pumpkin decorating party I hosted for my mentees last night turned out great! They had lots of fun and we all made some pretty cool pumpkins. And it turns out one of my newer mentees is also gluten-free and vegetarian, so we bonded over that and our love for Pinterest! :)
Day 55I made a new friend outside the dorm today. I think God knew that I was going to go back to the dorm and cut, so he put Kendrick (this is what the dorm is calling him) at the entrance. If I can get to sleep, I think kitty saved my arms… And everyone here is so sweet to him. :)
This isn’t going to be a particularly happy entry thing. I’m not going to focus on the beginning of my day, that was fine. It was the after that wasn’t too good.
I call myself a spoonie. I used to think that I wasn’t, that chronic back pain didn’t really qualify me. But I think there might be something, like, actually wrong with me.
You see, I throw up more than the average person. I don’t do it on purpose, my body does it naturally after eating certain foods. I’m pretty sure sweets is on the list of things I can’t eat, and fried foods too probably.
Anyway, I threw up again tonight. My parents started talking about how they think something’s wrong with me, but they didn’t really like that idea. So my mom switched to allergies. I really don’t think this is an allergy, I think this is an intolerance. There’s a difference. Maybe my body just doesn’t accept some foods. Maybe I have chrones (probably not) or IBS or that thing where you can’t eat gluten. The point is, I keep eating like a regular person (which is bad) and then end up throwing up. I just want to know what’s wrong.
But the thing with my parents is that they refuse to accept that there’s something wrong with me. They, like, daisgjpaoijpoigj. Can’t even. Like when I was doing the dishes, I started feeling nauseous, so I told my dad that I needed to stop and my sister could do the rest. He said no, that my sister had her own to do after I was done, and that I probably didn’t feel that sick. What bothers me is that when we went to my physical therapy thing, he told the physical therapist that I am a trooper and that I usually soar through the pain. That’s cool, Dad, but maybe you could make it so that I don’t have to do that? If that makes sense. After that, I held off my panic attack until I finished the dishes and was able to get to my room. It was so hard oh my gosh >.
Guess who gets to teach people about Spoon Theory this week? ME! So I made Spoonopoly :)
Sometimes, I just want to give up. (via shiningbrightinstarlessnights)
I found these at the dollar store today. I sent this picture to my friend and said that they’re spoons specifically for someone who’s depressed, or a spoonie who’s very prone to dementor attacks.I love this submission so much!! Didn’t tell me who sent it tho — msg me!
Oops I fell asleep before I could write this yesterday, so here it is now. We have a Canadian student here in our aviation program, and a few days ago he sent out an email inviting everyone to a potluck supper for Canadian Thanksgiving. So that was yesterday and it was a lot of fun! He cooked the ham and turkey, and everyone else brought side dishes. There were three dishes of sweet potato casserole, so we got to bring most of ours home, which is awesome. :)
ahh…Not feeling terribly well and have had a fairly nothingy and unproductive day… However. My only lesson today was cancelled (huzzah) so I stayed in and watched Doctor Who :)
I also slept last night (double huzzah)
and am going to bed early to read Tolkien (triple huzzah)